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General Practice Data for Planning and Research
As of 1st September 2021 your data will be shared with NHS Digital to help improve health, care and services Patient data from GP medical records kept by GP practices in England is used every day to improve health, care and services through planning and research, helping to find better treatments and improve patient care. The NHS is introducing an improved way to share this information – called the General Practice Data for Planning and Research data collection.
NHS Digital will collect, analyse, publish and share this patient data to improve health and care services for everyone. This includes:
- Informing and developing health and social care policy
- Planning and commissioning health and care services
- Taking steps to protect public health (including managing and monitoring the coronavirus pandemic)
- In exceptional circumstances, providing you with individual care
- Enabling healthcare and scientific research
Any data that NHS Digital collects will only be used for health and care purposes. It is never shared with marketing or insurance companies.
NHS Digital will not collect any patient data for patients who have already registered a Type 1 Opt-out in line with current policy. If this changes patients who have registered a Type 1 Opt-out will be informed.
If you do not want your patient data shared with NHS Digital, you can register a Type 1 Opt-out with us. You can register a Type 1 Opt-out at any time. You can also change your mind at any time and withdraw a Type 1 Opt-out.
Data sharing with NHS Digital will start on 1st September 2021. If you have already registered a Type 1 Opt-out with your GP practice your data will not be shared with NHS Digital.
If you wish to register a Type 1 Opt-out with your GP practice before data sharing starts with NHS Digital, this should be done by returning this form to us by 23 August 2021 to allow time for processing it. If you have previously registered a Type 1 Opt-out and you would like to withdraw this, you can also use the form to do this. If you register a Type 1 Opt-out after your patient data has already been shared with NHS Digital, no more of your data will be shared with NHS Digital. NHS Digital will however still hold the patient data which was shared with us before you registered the Type 1 Opt-out.
If you do not want NHS Digital to share your identifiable patient data with anyone else for purposes beyond your own care, then you can also register a National Data Opt-out (also known as Type 2 Opt out).
Prostate Cancer Research
We are helping identify people registered with us to take part in a large study called TRANSFORM. TRANSFORM is being run by Imperial College London and funded by Prostate Cancer UK and the UK government’s National Institute for Health and Care Research (NIHR).
What is TRANSFORM?
TRANSFORM is a study that will try to find the best way to detect prostate cancer early. The study will help the NHS decide whether a national screening programme for prostate cancer should be introduced in the future.
Who could be invited?
Invitation letters are being sent to selected men aged 45 to 74. If you are invited, you will receive more details about the study and can decide if you would like to take part. The invitation will come from your GP practice on behalf of Imperial College London. If you choose to take part, you will be asked to give your consent.
Whose health records will be used?
The study will also use information from NHS records for some men who:
- have not been invited
- are eligible, but do not respond
This information is used in a secure and confidential way. The information will provide valuable evidence for the study. You do not need to do anything unless you wish to opt- out.
Don’t want your data used in TRANSFORM?
If you don’t want your health information to be used for TRANSFORM, you can opt-out at any time. Opting out will not affect your NHS care or your ability to take part in other screening programmes or studies in the future. To opt-out, please contact the TRANSFORM study team directly by email, phone or post:
Email: imperial.transformstudy@nhs.net
Phone: 020 7594 6002
Post: TRANSFORM Study Team, Imperial Clinical Trials Unit, 1st Floor, Stadium House, 68 Wood Lane, London W12 7RH